Monday, September 24, 2007

Day 20 Already

It's been a little while since we posted anything, mostly because there's very little change in JR and he's been handling things beautifully. Doctors, technicians, receptionists, etc. are constantly commenting on how well he's doing. A little tummy stuff once in a while but we have medication to combat nausea and it works like a dream. The problem we have is holding him back - his energy level hasn't dropped at all as evidenced by some massive neighborhood-wide "manhunt" games that require hours of running (and screaming??) and great weather activities that need to be done while they can. After several hours in a car and at doctor's appointments, he just wants to play outside. I'm a believer in outdoor exercise as a cure for most ailments so we'll see if I'm correct here. So far, blood counts are normal and he has all of his hair, so all we're seeing is a little lack of appetite and some fatigue, something only his parents would probably notice. We're almost at the half-way point for his chemo (tonight it's 20/42) and for radiation we're at 14 out of 33 for this round. He's truly remarkable.
Our wonderful driver has been such a comfort and can beat any traffic anywhere. Like me, he likes to find alternate routes so I like to pay attention to learn new ways to get in and out of Manhattan and bypass Merritt and 95 traffic. Bravo to J.P. We're never late for an appointment and when we're finished, we have a polite and sweet person there waiting to take us home. We're very blessed.
JR had his homebound tutor start today. Miss Tobin is a Kindergarten teacher at Holmes School (JR's school) who has an outstanding reputation amongst us parents. She'll be here each day from 3:20 to 4:20. Very thankful to have her!! Don't really understand the home school thing - I was hopeless.
We had a busy week with extra appointments last week and therefore extra meals organized by my incredible neighbor. Thanks again to Fitzsimmons, Keevers, Van de Graafs, Pasierbs, Guttusos, Hurleys and Donnellys to name a few. We are storing up for the winter in style.
Jim and I finally started back at yoga which for us was a milestone. Our yoga group has taken us in as family and has been unbelievably generous to us so that helps bring peace within.
All is well and we thank everyone for their continued positive thoughts.

6 comments:

  1. Hey Sharon I's JR & Addies First First Teachers, Jen Dolan And Maria. We are so upset about hearing this news of JR and your family. We just heard this today and out hearts broke, forthe teachers that saw their fort steps any harm to "our first babies" hits us at home. I am glad to read these and know that JR is doing well thats GREAT. please give him XXXX & OOOOOOO's from us & please let us know if there is anything we can do. we would love to get together and soo you guys too. We often speak about you guys and what great parents you guys are.

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  2. please contact me witha nything
    miss you guys
    Jenn Dolan

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  3. Keep the good news coming!!
    see you soon
    Love,
    Dad

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  4. Hi Sharon & Jim & Addie so sorry to hear the news. I know as a family your strength and love will beat this. Knowing what an emotional rollercoaster you all are on we want you to know our prayers are with you. If there is anything we can do let us know....maybe we can go on the powerboat for a few hours and leave the shore behind. Please call. Love Mara

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  5. You Schoen's are amazing. It starts with the parents, you know - both of those beautiful children get their amazing strength from you and Jim. Sharon - you are incredible, I hope you know that you're doing an outstanding job. Your family is stronger than ever, and it shows. We love you all, and will continue to pray for you.

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  6. Sharon
    We were so upset to hear your news about JR. We want you to know that you are in our thoughts and prayers.
    It is nice to read your blog and hear about how inspiring children are in tough times like these. He is handling everything like a champ!!!!
    Take care
    The Caponiti Family

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