Monday, October 29, 2007

We're Taking a Break and Getting Back to "Normal"

It's been a while since the last posting, mostly because we've not had a ton of things to report. Things are going great! JR's radiation treatments ended on October 19th and we celebrated with a trip to Texas BBQ on First Avenue, Webkinz, etc. The staff at Radiation Oncology were truly terrific and we miss them! The following Wednesday, we had a follow-up visit with Dr. Dunkel and JR's last "finger stick" for a couple of weeks (which makes him happy to no end!!). His counts were very strong, all in the normal range which means that he has a normal ability to fight infections, etc. To me, it meant that he can go ahead and be a normal kid and feel good and take a sigh of relief. He started back at school the next day for a short day (which included a nice little celebration at school and that evening at our neighbors - thank you Kimberly). He's been going in in the morning and coming home around 12:30 over the last 4 school days and we'll gradually get him to a full day. All the kids are so well trained by his teacher as far as what needs to be done each evening that we have some catching up there, but he seems to be in the mix as far as his schoolwork goes. His tutor has been very helpful and we have a nice neighborhood girl who's in his class helping out by bringing him home stuff that he needs. Thanks Amanda!
We have scheduled JR's next MRI on Nov. 14th after which he will begin his next 10 rounds (give or take) of chemo. A round as I understand it is a 28 day cycle with 5 days on (stronger dose than before) then 23 days off. Back into the unknown but not so unknown as before. He handled his first part of the treatment so well that we all expect that he'll do just fine. I try not to pressure him into feeling one way or the other by my comments and don't want him to feel as though he's disappointing us if he doesn't feel well so I encourage him to be honest about how he feels. That being said, I still feel he'll be fine!! The only caveat I have to that is that I still am unable to make plans and I still freak out now and then. The flip side of that is that it's great to just be home and not racing around and not worrying about where we need to be next. It leaves us time for our family nights and to focus on what's really important.
We braved it down to AYC on Sunday and were able to see a bunch of friends who were happy to see both my little goblins (Addie is a girl pirate and JR is a scary devil-skeleton-ish thing). As most of you know, we had just finished camp with a lot of these families when this whole thing started so we hadn't seen many since. I was one proud mama!! Looking forward to Wednesday evening's trick-or-treating which is always a fun night for us. Will touch base again soon! Thank you to everyone who keeps my boy in their prayers.

8 comments:

Unknown said...

Hey Sharon,
It was great to see you guys yesterday. For everyone reading I can confirm that JR has tons of energy and looks and feels great. He was running and jumping all over the place - made me tired just watching him. You guys are the best....let's get together for a bbq sometime soon.

Uncle Chris

Carolyn and Kevin said...

Uncle Kevin is really looking forward to seeing you guys this weekend and wants to see pictures from Halloween. I wish I could come too! We are so glad you are finally back to some normalcy! Love you all-
Cal & Kevin

Fogmoose said...

Hello Sharon and Addie and Jim and especially JR;

Miss you all very much and hope I can get up there soon....

Love Always, Uncle Richie

Holly Schoen said...

I'm so glad that JR is doing so well!! I can't wait till thanksgiving when to see him~ Holly

jeanne said...

Hi Family,
I'm Jeanne Green - Nor Nor's niece in Indianapolis. We have been following JR's progress thru your blogs and we are glad to hear that he is doing so well. My parents, Jack and Sis, are always glad to hear your news. They send their regards, prayers and the message to stay strong. Later today, I am flying to Orlando for Thanksgiving with my family. I have printed out 8 pages of blogs for my parents to read. They will read every word, and be so happy to have this communication. Sadly, they don't want a computer, even though they know they are missing out. My niece is studying for her Doctorate at Columbia University. We asked her about JR's doctors and hospital. And she said that JR's in the best place with the best of doctors. Know that you are in our prayers for strength. And wishing you all a wonderful Thanksgiving. Please let us know if there is ever anything we can do. All our love, Jeanne, Barry and Katie xxoxoxoxoxoxoxoox

kk.colvy said...

hello "super" family!!!

just a quickie to say that I love you guys, you are in my prayers and i miss you!

always & forever

kk

kk.colvy said...

hello "super" family!!!

just a quickie to say that I love you guys, you are in my prayers and i miss you!

always & forever

kk

kk.colvy said...

Hello "super" family,

just a quickie to tell you i love you guys, you are in mine and my comminities prayers and i miss ya!

always,

kk