We're Home!

I wanted to let everyone know that we arrived home last evening. It was very hectic getting out of the hospital and I wasn't sure if it would all happen - getting prescriptions filled, dealing with the ambulance, getting the nursing service set up at home, etc. It all came together and it was a very emotional departure - we've had wonderful and caring help at MSKCC and I was nervous about doing it all at home. Upon arriving at home, I was greeted by Jim and his mom (who has come to stay to help out) and my "3", that is Andrea, Patricia and Kimberly, all there to help and make the transition for us much easier. The visiting nurse came and went through all of our medications, etc. and ordered an oxygen machine that was delivered later that evening. Addie was out at Movie Night at AYC and arrived home at 10:45 PM!!! She is happy that her brother (and her mommy) is home. Andrea and Patricia stayed ALL NIGHT (until 6:30 am) so that I could finally get a night's sleep which was absolutely delicious. Everyone's getting to know how to help with repositioning, feeding, giving medication, etc. so that I can spread out the responsibility here and there. That's it for today - I just wanted to let everyone know that we're home and JR seems very calm and peaceful and very much loved. Thank you so much to everyone for lending a hand and once again for all the wonderful prayers.